29 JanGrief Digest Magazine

Grief Digest is a quarterly magazine supporting grieving people and caregivers. The Centering Corporation which is the largest and oldest grief resource center in the country has created this resource by gathering a remarkable group of writers to aid you in your journey.   Call toll free 1-866-218-0101 to order or visit http://griefdigestmagazine.com/.

The tender, fragile buds of Spring, the lush, dynamic leaves of Summer, the crisp colors of Autumn and the barren branches of a Winter grief all are expressed in the beautiful new logo of our dynamic, inspiring new Grief Digest. Your new, reader-friendly magazine will include the best writers and speakers in the field of bereavement. There will be interesting articles on coping and dealing with grief, help for the caregiver and most of all, the usual quality and support you expect from your Centering family. Add to that a tremendous editing job by former Bereavement Magazine publisher Andrea Gambill and you have a quarterly support group at your fingertips.

28 JanNorth Shore’s Walk to Remember

In 1988, President Ronald Reagan named October National Pregnancy and Infant Loss Awareness Month (proclamation), as a way to remember the almost 1,000,000 babies who die each year due to pregnancy loss, stillbirth, and early infant death.  In recognition of National Pregnancy and Infant Loss Awareness Month, the North Shore chapter of SHARE gather for their annual Walk to Remember and memorial service.  This event celebrates the children who were with us briefly, but who touched our lives forever.  Many HOPE members attend this walk and together remember their precious children.

Each year, the walk is held at Breakheart Reservation (directions) in Saugus, MA.  The 2011 event has not been scheduled at the time of this post.

Click here to visit the Walk to Remember site.

28 JanHOPE Mother Asks for Grave Markers

Nadia Purifory, a HOPE member, was featured in a newspaper article that first appeared in the Medford Transcript in December of 2008.  The same story was published in the Spring 2009 New Hope newsletter.

Imagine losing a child and being unable to visit their grave. It’s a situation many parents of stillborn infants deal with-and a situation one local mother hopes to change.

In 2004, Nadia and Kevin Purifory’s son, John Kevin, was stillborn. The couple received the option of interring the infant in a general plot at Oak Grove Cemetery or spending $50 to allow the funeral home to bury the body in a mass grave dedicated to stillborn babies. The Purifory’s bought a plot, picked out a headstone and began the long process of grieving for their child. Nadia Purifory visited the cemetery, often passing a grassy patch of grass towards the back near the veterans area.

There was nothing there,” she said. “Then on one visit, I noticed an old marker that said 1953. It was homemade.” Realizing what the area was, Purifory was surprised to see trash, brush and dog feces covering the patch. “A lot of people probably don’t even know what that area is,” she said. “My sister and I started going up every week to clean it up. As soon as we did that, it seemed like people started leaving little mementoes here and there.”

The area remained untouched — until this past September. “I hadn’t gone up as frequently,” she admitted. “One afternoon, I drove by and saw all through the grass were tire tracks of work vehicles. The cement markers from the city were raised up and all the items people left, the flowers…there was nothing left.”

Purifory immediately felt the loss of her son all over again. “I started to cry,” she said. “I felt that same empty, sick feeling.  I felt like this area was being treated like there was no life there. It was all ripped away and I felt bad for these parents who were coming there.”

A nurse at Lawrence Memorial Hospital, Purifory has cared for older women who have told her about their stillborn babies. And when she explained she took care of the area at the cemetery, she said the women have thanked her.  Because of her close contact with these parents, Purifory decided she couldn’t let the matter just drop and called Oak Grove to find out what happened.

“I spoke to a secretary, who didn’t seemed too shocked by it,” Purifory said. “She called it part of their cleanup. When I said everything was gone, she told me that was the rule. People aren’t allowed to leave things in front of the stones or behind them.” Having run up against the rule with her own son’s plot — and consequently having her own items thrown away in the garbage by cemetery workers — Purifory was familiar with Oak Grove’s regulations. And while she agreed the city has to maintain the cemetery, she wanted to do something to honor those small lives that never had a chance to thrive.

“A marker,” she said. “A plaque. I’d like to see something to indicate that there is life there. Why should these babies be treated any different? I can’t see why the cemetery can’t make a change. I know I would be willing to give money towards a plaque or a bench or even a tree. Something.” Trish McDonough agrees. As a member of the Board of Cemetery Trustees, McDonough was surprised to hear about Purifory’s experience.  “People do tend to go overboard, but it’s understandable because they’re grieving,” she said of the items often left behind. “The problem is that the people with the grave next door can sometimes be offended. We want to honor people’s grieving and at the same time be respectful.  For the most part, people adhere to the rules.” McDonough said when someone buys a grave at Oak Grove, they are given a copy of the rules and regulations. But, she added, it’s understandable that many people don’t read it right away.  She said cemetery workers don’t throw items away and that if a violation occurs, the cemetery will send out a letter to an owner, giving them 10 days to collect their belongings. If they fail to do so, items are collected and placed in the garage.  As for the condition of the stillborn area, McDonough said she was aware of people walking their dogs at Oak Grove, despite signs saying otherwise. She promised to look into the situation.

Days after speaking to McDonough, the Transcript received a follow-up call about the possibility of marking the stillborn area. After speaking with cemetery superintendent Steve Brogan, McDonough said there’s currently a sign on the area calling it Green Lawn. “It doesn’t say it’s the stillborn site,” McDonough said. “The concern is also that people might think the geese [feces] is from dogs. There’s nothing you can do about the geese.” As for Purifory’s suggestion of better marking the area to let people know what is buried under Green Lawn, McDonough is all for it. She said she’d like to invite Purifory to the board’s next meeting to discuss the issue. “My only question would be what the marker would say on it,” she said. “I want to make sure that we’re going to be very, very sensitive to the matter and make sure all her concerns are addressed.” Upon hearing then news, Purifory was thrilled by the reaction. “I’m very appreciative,” she said. “I can see she’s sensitive to the issue of loss and all these infants. I’m willing to look in the direction of having a plaque in place so people know this is an area where there’s human life. Someone has got to speak for these infants who can’t speak for themselves. “The other sections of the cemetery…there’s so much respect for them,” Purifory continued. “People don’t walk on them. But this, I know people would be respectful if they just knew.”

While every cemetery has it’s own rules and regulations, some are now looking at ways of helping parents through the loss of their newborn. In Malden, Jim Cahill tries to maintain a balance of following the rules while still allowing parents to grieve. The superintendent of cemeteries, Cahill said the stillborn area is located in an area at the back of the Forestdale with flat markers. “I allow people to leave an item for a small amount of time,” he said. “These are people who are dealing with a terrible tragedy. I’m soft-hearted to begin with so I don’t take the things right after they bury their stillborn baby.” Cahill said after a time, loved ones stop coming and items are removed. “The problem takes care of itself,” he said. “Like I said, I’m lenient for a short time period and then I abide by the rules.” Cahill said in the spring, there was a mass cleanup done by the cemetery workers, where 350 bags of items were picked up. Cahill said items were individually bagged, letters were sent out to families informing them and most people came to pick up their belongings without a problem. “I think you have to have some common sense,” Cahill said. “You have to work with people, not against them.”  The cleanup was so successful, Cahill is looking towards doing it again. This time, he said he’s not only going to put an announcement in Malden’s local newspapers, he’ll also send out e-mail. Having collected addresses when paperwork is filled out, Cahill said his department is looking at a way to build a database so he can send out a mass e-mail, letting people know they need to pick up their belongings before the clean up. “You still have people who are belligerent about it,” he said. “But we had about 90 percent of people who were good with it.”

In Winchester, no objects are allowed on the stillborn area. The entire cemetery is cleaned in January and again in July.  Items are taken to the dump to be disposed of. Pat Haverty, the secretary at Wildwood Cemetery, said the stillborn area has no markers and is mostly used by Winchester Hospital. “Usually, it’s young parents who use the area,” she said.  “A lot of them don’t have the money to buy a plot.” Haverty added there has been a lot of talk of placing a plaque in the area to identify what’s there, but the town has not moved forward with any plans as of yet.

Reprinted by permission of GateHouse Media New England/The Medford Transcript, December 31, 2008.

25 JanJulia’s Ripples

Donna McDonnell, wrote this article for the 2003 Fall New HOPE newsletter.  Her daughter, Julia Marie was born still on December 3, 1998.

My son Matthew loves me up to the moon and back. He is my joy, my love, and my best friend. He makes me laugh and smile, and touches my heart like no other. He is my second child. Julia is my first and would have loved me just as much as Matthew. She would have been five in December of this year.

Our pregnancy for Julia was picture perfect. There was no morning sickness, no swollen ankles, no bleeding. We were blissful, innocent, and lucky. We had stars in our eyes and dreams of an entire life together. It all changed when we went into labor and went to the hospital. Julia was full term when we were told she had no heartbeat. It was not comprehendible. Labor was just that, labor. I touched my belly daily to show her love and comfort. When we learned she was not alive, my touches ceased. I was in shock. I was angry and enormously sad. I felt guilty then and even now that I didn’t comfort her in her passing. My mind was not mine at the time. It felt surreal and I desperately wanted to wake up from the bad dream.

We held Julia for a long time once she was born. We were so lucky to have our families with us. They held Julia as well. If not for the medication I was given my thoughts would be clearer. Maybe that’s why I still get angry that those last moments aren’t clearer. One moment I was holding my beautiful daughter and the next I was falling asleep.

Now that close to five years have passed, I wonder what life would be like if she were here. It’s been so long and so much has happened to us. I think of those first few days often and feel blessed that so many friends, family, and strangers reached out to us. In life we can look at bad times and remain negative. I chose to spin the negatives into positives. Julia’s death was a negative in many ways but was also a blessing. Her short life touched so many people.  It made people react in ways they never thought possible. Family members came together and were thankful that relationships could be repaired. Others felt grateful for what they had instead of what they didn’t. I learned the true meaning of love from my family and my husband. Their love was unconditional when I felt irrational, angry, and frustrated. My friends were there for me as well. They grieved along with me. They shared their emotion and prayers of hope for a better tomorrow.

All of the connections I made to others, the love and support that I received, and the nine months that I spent with Julia are all things for which I am grateful. Just as a stone thrown into the water creates ripples, so does her memory with our family and friends. Her short life continues to touch us often, if not daily. Matthew’s smile, giggles, the twinkle in his eyes that remind me of my husband Steve, and whenever I see a ripple recreated in the sky, water, or sand makes me think of Julia.

Her ripples make me want to live a richer and fuller life. She brought me to the HOPE Group where the support I received was and still is immeasurable. Sharing stories of life, death, and hope enabled me to wake up every day and not feel alone. Julia’s spirit lives in everything I am and do. She inspired me to help others in the HOPE Group and begin another support group called A Ripple in Time. My wish is to shed light to others so that they can heal and live a richer and fuller life because of the spirit of their child, a child like mine; my dear precious little Julia.

23 JanEmpty Arms: Coping After Miscarriage, Stillbirth and Infant Death

Revised and updated! This classic book is one of the first given to newly bereaved parents to offer guidance in decision-making after their baby’s death and to assist caregivers as they support families. Empty Arms encourages families to meet their babies and say hello before rushing to say goodbye. With compassion that comes from Sherokee and David’s experience of having lived through the death of their son Brennan, the book offers guidance and practical suggestions for the decision-making at the time (including why and how one might see, hold, and memorialize one’s baby) and over time (such as how to handle such times as anniversaries, holidays and the birth of other babies in the parents’ close circle.)

Family and friends can learn how to understand the loss and be supportive of the bereaved families.

It offers ongoing support about subjects such as returning to work or to life, couple grieving, surviving children, feeling guilty, having another child or not, and feeling lonely.

With over 300,000 in print, this book touches the hearts of families at the time of their loss and over time as they heal.

An excellent bibliography and resource section are included.

23 JanNow I Lay Me Down to Sleep

From the Now I Lay Me Down to Sleep Foundation Website:

“Pregnancy and birth are miraculous journeys. This amazing time of life is full of mystery, anticipation, joy, hope, and wonder. Feeling the powerful energy of birth and new life, watching as a new family is born unto each other. These things humble and amaze. These are the things that we celebrate when a baby is born.

But there is another aspect of pregnancy and birth. There is an unexpected place in this journey where some families may find themselves. When a baby dies, a world is turned upside down. There is confusion, sadness, fear, and uncertainty that cannot be explained. There is sorrow where there should have been joy. During this time, it might be impossible for families to know what they might need in order to heal in the future.

This is the place where the Now I Lay Me Down to Sleep Foundation gently provides a helping hand and a healing heart. For families overcome by grief and pain, the idea of photographing their baby may not immediately occur to them. Offering gentle and beautiful photography services in a compassionate and sensitive manner is the heart of this organization. The soft, gentle heirloom photographs of these beautiful babies are an important part of the healing process. They allow families to honor and cherish their babies, and share the spirits of their lives.  The NILMDTS mission statement is to introduce remembrance photography to parents suffering the loss of a baby with the gift of professional portraiture.  We believe these images serve as an important step in the family’s healing process by honoring their child’s legacy.

The Now I Lay Me Down to Sleep Foundation (NILMDTS) administers a network of more than 7,000 volunteer photographers in the United States and 25 countries. At a family’s request, a NILMDTS Affiliated Photographer will come to your hospital or hospice location and conduct a sensitive and private portrait session. The portraits are then professionally retouched and presented to the families on an archival DVD or CD that can be used to print portraits of their cherished baby.”

23 JanA Silent Sorrow

A book review of A Silent Sorrow by Kirkus Reviews.

In this comforting, thorough second edition of the 1993 guide for those who have suffered the loss of a pregnancy, Kohn, a social worker (and founder of the National Council of Jewish Women’s Pregnancy Loss Support Program), and Moffit (a lay counselor for that program) sympathetically address the full range of tragedies, including miscarriage, ectopic pregnancy, losses following a medical crisis, stillbirth, newborn death, and having to end a pregnancy because the baby’s or mother’s life or health is compromised. Using the term pregnancy loss to “embrace all losses that occur whenever a wanted pregnancy has ended,” they begin by explaining the special nature of grief that follows losing a baby. “No matter what kind of pregnancy you experienced,” they counsel, “you are probably unprepared for the anguish you feel . . . you have lost a baby who was a real part of you and your hoped-for future.” The authors consider the ways the experience of loss differs for mothers and fathers, the ways the relationship may be changed, and the medical, practical, and emotional issues for each type of pregnancy loss. “The Response of Others” considers the reactions of family and friends, and helping other children and grieving grandparents cope. Finally, “Special Circumstances” addresses career issues, infertility, and the possibility of subsequent pregnancies. A helpful update reflecting changes in both medical care and the social climate. — Copyright ©2000, Kirkus Associates, LP. All rights reserved.

23 JanWaiting for Daisy

The following is a review of Waiting for Daisy from Publishers Weekly.

The author of Schoolgirls: Young Women, Self-Esteem, and the Confidence Gap, Orenstein now offers a very personal account of her road to becoming a mother. Orenstein was a happily married 35-year-old when she decided she wanted to have a baby. While she knew it might not be easy (she had only one ovary and was heading into her late 30s), she had no idea of the troubles she’d face. First, she was diagnosed with breast cancer, fortunately treatable. After waiting the recommended recovery period, she miscarried with a dangerous “partial molar pregnancy,” so she had to avoid becoming pregnant for at least six months. Soon she was riding the infertility roller coaster full-time, trying everything from acupuncture to IVF and egg donation. She endured depression and more miscarriages while spending untold thousands of dollars. Even her very understanding husband was beginning to lose patience, when, surprisingly, she got pregnant with her daughter, Daisy. While readers don’t have to be fertility obsessed to enjoy this very witty memoir (with its ungainly subtitle), for the growing number of women struggling with infertility this book may become their new best friend. (Feb.)
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.

23 JanEmpty Cradle Broken Heart

The heartache of miscarriage, stillbirth, or infant death affects thousands of U.S. families every year. Empty Cradle, Broken Heart offers reassurance to parents who struggle with anger, guilt, and despair after such tragedy. Deborah Davis encourages grieving and makes suggestions for coping. The book includes information on issues such as the death of one or more babies from a multiple birth, pregnancy interruption, and the questioning of aggressive medical intervention. There is also a special chapter for fathers as well as a chapter on “protective parenting” to help anxious parents enjoy their precious living children. Doctors, nurses, relatives, friends, and other support persons can gain special insight. Most importantly, parents facing the death of a baby will find necessary support in this gentle guide. If reading this book moves you to cry, try to accept this reaction. Your tears merge with those of other grieving parents. You are not alone!

21 JanAn Exact Replica of a Figment of My Imagination

Andrea Meyer, a HOPE member, recommends this book to HOPE.  It can be found online at Amazon.com. The following review is from Bookmarks Magazine.

In Elizabeth McCracken’s heartrending memoir—a love letter to the child she lost and the devoted husband who suffered alongside her—McCracken displays her many talents. Her warmth, candor, crystalline prose, lovely imagery, and attention to detail bring her painful story to life. McCracken’s dark sense of humor ensnares unwitting readers, belying the sadness with which she writes, and she shows very little patience for self-pity and sentimentality. Critics praised her clear-eyed account in a genre replete with syrupy, self-aggrandizing books, though some expressed doubts that its subject matter would have wide appeal. “I’m not ready for my first child to fade into history,” explains McCracken. With this heartbreaking account of his life, there’s little chance of that.  Copyright 2008 Bookmarks Publishing LLC


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